Sunday, May 30, 2010

On the up and up!

Pure Happiness! That is all we need to get through Cardiology. She discovered that she can blow bubbles all by her self. And she succeeded too. Along with swallowing a few. Good thing they are non toxic!

Unfortunately, I had no more size three diapers and she needed to be changed. So luckily, I had a size one of Claire's. So we did what mom's do best and improvised. We managed to squeeze her into it.

This is after bath time. If you mention the word bath, she heads straight to the bathroom and will climb into the bath, clothes and all.

Lately I have been pulling out the camera and she knows exactly what to do. I get a "cheese" from her and several poses.

We had Ellie's cardiology visit last Wednesday. And the conclusion to that visit is that her heart is still improving!! Yeah! This is such a relief because it took seven months to start seeing any improvement. And in December, Dr. E said that she felt like a transplant was Ellie's best option but felt like she needed to be cancer free for at least a year before they would consider her for transplant. I feel very grateful for all the prayers and thoughts going our way because I feel that there has always been a higher power with Ellie. From day one the odds were against her. Dr. Buckman from Huntsman ran into my mom-in-law shortly after E was admitted last summer. (He was working with Dr. Park on her tumor.) She asked him if he had heard about her with the heart problem. He said that of course he had heard and that she was the buzz of the hospital. He said that it was so rare for a child to be faced with two non connected major things like that. I am so grateful that she is still with us today when the odds have been so against her. We have another heart appointment in July and then the dreaded MRI in August. Yuck!! That always comes around too quickly. I wish there was an easier way to look at the tumor. Somehow, we will take it a step at a time. Ellie is truly a living, breathing miracle. She and my other girls continue to amaze me everyday. I have really tried to end each day by saying to myself what special thing each one of them did or said. I love this quote that I found on another heart mom's blog...
"There are two ways to live your life - one is as though nothing is a miracle, the other is as though everything is a miracle ~ Albert Einstein"


  1. Glad to hear that your little Ellie's cardiology appt went well. I'll be praying that her other tests will come back with good news for all of you.

    I received your message on Logan's blog. I fired an e-mail to you so please let me know if you don't get it. I look forward to chatting with you!

  2. SOO glad to hear good news :) She is a miracle, sweet little girl!!

  3. Becca, The other day someone foolishly posted a comment about a sick and suffering child that said it would have been better for the child not to have been born. I remember thinking then how awful that would be for us, if Ellie had not been born. How awful would it be to live without miracles in your life? With Ellie, beside having a beautiful child to love and cherish, we have the blessing of seeing our prayers answered in a very real and tangible way. She reminds us that our Heavenly Fathers does care about us individually and that he knows us. We are witnesses to great miracles. What a special blessing she is! And on top of that each of the other children bring their special light and own set of miracles. I can't think of any greater blessings! Love, Dad

  4. I love the pictures of the little tyke. What a wonderful miracle this little precious is. Heavenly Father has answered a lot of prayers. Heavenly Father has a lot in store for this little girl. I love her so much!!!!!!!! This past year has stretched my faith more that I haver thought it could be.