One night, in February, I was laying there with Ellie. Nate was working late, and as I watched her and her movements, I just felt like something was wrong. I tried to keep the thought out of my head and thought it was from my fears of losing Eve. There was nothing wrong with her that I could see except she hardly was moving her right arm, which is something I noticed from birth, but I couldn't seem to shake my worries. my worries were confirmed the next day when she looked like she had a stroke. Our adventures began that day and the quest to help our little Ellie Marie through the challenges to come.
I'm a bit of a germaphobe when it comes to my kids. I have taught them to push elevators with their elbows, flush toilets with their feet, and use paper towels to open the door. I didn't leave the house for weeks or go to church after Ellie was born for fear of her getting RSV. When the girls would get home from school, I would make them wash their hands and sanitize before they came near her. I went to my two month appointment at the doctors office and took all the necessary precautions. But a few days later, I noticed a slight cough and a wheeze. I debated, should I shouldn't I take her in. If she doesn't have it, she will probably get it, and if I don't, she could get worse. So, I take her in and sure enough, she tests positive. I'm trying not to be a baby about it but I tear up when the doc tells me it is positive. This started two weeks of suctioning and hospital visits in an RSV clinic. I don't get it, the more careful you are, sometimes it still doesn't matter.
"Sometimes the pattern of life seems monotonous and discouraging. It is like climbing a mountain and after reaching the top, getting knocked back down to the bottom to climb it again; but I guess the fun is in the climbing and not the arriving!"-Marjorie Pay Hinckley
Nate, Becca, Macy, Adrie and Ellie
I am the author of this blog, my name is Becca and this is our story. My husband and I have four beautiful girls. Macy, Adrie, Eve (who was stillborn) and Ellie. Ellie is the reason for this blog. She was born with a neuroblastoma in her neck and a coarchtation of the aorta. She has congenital heart disease and severe cardiomyopathy due to a late diagnosis. We are hopeful of the outcome and wanted to share our journey with family and friends. I wanted to update her status as of January 2010. Ellie has physically done well despite her heart not seeing any improvement. We are still in limbo of whether she will need the transplant, but we are hoping to avoid that. The tumor was shrinking, but after the last scan appears to be slightly larger. We have a follow-up MRI in February, so wish us luck on that. She is one year old and talking and trying to stand on her own. She is such a joy to us and her sisters and keeps us all entertained.
Macy is such a bright personality. She loves to take care of her siblings and is the perfect non-rule breaker. She is such a good example to her little sisters and is very nurturing.
Adrie is our spitfire and Is our drama queen of the family. But she is extremely tender hearted and is very observant of others and their feelings.
"Some people dream of angels, we held one in our arms."
This is Ellie! She is the reason behind this blog. She is the bravest strongest girl I know!!!
The baby of the family of all girls! She has been such a happy go lucky child. She keeps us laughing with her cute and fun personality!