Wednesday, September 23, 2009

Don't take life for granted

Ellie conked out and taking a siesta on the floor. She is starting to take some decent naps.

We recently returned from Ellie's appointment at Primary Childrens. The over all verdict is that there is no change in her condition. The only way that I know how to look at this is that at least it hasn't got any worse. Dr. Everett sounded really positive about how she looked though, she had gained weight, which is a huge deal for these heart babies. She is going to give her about three to six months to see if heart function improves. They are also going to watch her pulmonary pressures real good to make sure they stay open. She said if they go bad, they can't even talk transplant. So we are once again in a hurry up and wait situation. We are taking life a day at a time. And enjoying every day because you never know what tomorrow will bring.

On the way up, we saw a crash that involved two vehicles. It did not look very good, and as we approached it, we could see that a blanket was spread across the passenger side of one of the vehicles. It is very sobering to see that and to think that probably a half hour ago was alive and well, with the family or friends that they were with. And now they are realizing that their worlds will be forever changed. Every life is so precious and it can be taken in an instant.

We are going through a rough patch in our lives right now, but I can't help but feel so blessed. We feel our saviors love and the love of those around us. I couldn't be blessed with a better husband and father to my beautiful girls. He has been my rock and my companion and we have truly grown closer through adversity. Every mile stone that Ellie has reached has been a miracle in itself as well as my other girls. Macy is doing well in Math and it is priceless to watch Adrie learn to read. I am hoping for a good memory because that is all you can take with you when we leave this world. "Be kind, Everyone you meet is fighting a hard battle."-Marjorie Pay Hinkley. Some battles are harder than others but I know that we can learn and grow and become better people because of them. Anytime we got down on ourselves at the hospital, we didn't have to look far to find someone worse off. We are still learning from the strength and resiliancy of others. We don't know where we will be a few months from now but we are greatful for the health Ellie has and we are praying for improvement. She is such a blessing in our lives.


  1. Oh, how that brings back so many memories. I always thought the same thing when her heart function had not hanged, "at least it's not worse." Keep up that attitude, because it will help get you through everything. If you ever need anything, please let me know. The waiting game is so hard, but nice when you can be home. Take care, I am glad to hear that she looks so great!!!

  2. I have waiting for the update. I am glad that things have not gotten worse. There is a always a silver lining. I am sorry about the picture. I am waiting for Ryan to put the pictures on the computer. I will get him right on that. We will continue to pray for little Ellies function. Sending lots of prayers

  3. Thanks for the reminder of how precious life is. I need to be better about enjoying the here and now, and let the little things slide.
    We miss you guys!

  4. Becca,
    You are such an inspiration to me! I will keep Ellie in my prayers!

  5. Hi there-

    I am a fellow heart mommie and a mommie to an Ellie too. My little heart girl is Mia, and have we been in the "rough patch" mode as well!! I will pray for your family and your sweet Ellie.