Bless Her Heart: Wordless Wednesday!!!

Wednesday, July 14, 2010

Wordless Wednesday!!!

1 comment:

Ford FamilyJuly 29, 2010 at 9:30 AM
Thanks for the absence of a picture. And thanks for the chuckle. I was just thinking about your family yesterday morning, and wondering how you were doing. Besides the crappy day (he-he), hope all is well.
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Ellie's Story

I am the author of this blog, my name is Becca and this is our story. My husband and I have four beautiful girls. Macy, Adrie, Eve (who was stillborn) and Ellie. Ellie is the reason for this blog. She was born with a neuroblastoma in her neck and a coarchtation of the aorta. She has congenital heart disease and severe cardiomyopathy due to a late diagnosis. We are hopeful of the outcome and wanted to share our journey with family and friends.
I wanted to update her status as of January 2010. Ellie has physically done well despite her heart not seeing any improvement. We are still in limbo of whether she will need the transplant, but we are hoping to avoid that. The tumor was shrinking, but after the last scan appears to be slightly larger. We have a follow-up MRI in February, so wish us luck on that. She is one year old and talking and trying to stand on her own. She is such a joy to us and her sisters and keeps us all entertained.

Wednesday, July 14, 2010

Wordless Wednesday!!!

1 comment:

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