Ellie felt much better after she was able to see her sisters Macy and Adrie. We moved out of the PICU and are on the Medical Surgical floor. She is doing well, all things considered.
Oh, Becca! I love it! She looks soo good. That just makes me have a great big smile to see her happy like that. I am sure that it was soo good for her to be able to see her sisters and for her sisters to get to see her. I just want to pick her up and give her big love's. Kim :-)
Kim just told me about Ellie's blog today and I am so happy to get to see sweet Ellie smiling and that she is doing well! We love and miss you guys and are so glad the surgery went good! Kaylee was happy to see her long lost friends on the video and says to tell the girls hi! Thanks for the updates!
"Sometimes the pattern of life seems monotonous and discouraging. It is like climbing a mountain and after reaching the top, getting knocked back down to the bottom to climb it again; but I guess the fun is in the climbing and not the arriving!"-Marjorie Pay Hinckley
Our Family
Nate, Becca, Macy, Adrie and Ellie
Ellie's Story
I am the author of this blog, my name is Becca and this is our story. My husband and I have four beautiful girls. Macy, Adrie, Eve (who was stillborn) and Ellie. Ellie is the reason for this blog. She was born with a neuroblastoma in her neck and a coarchtation of the aorta. She has congenital heart disease and severe cardiomyopathy due to a late diagnosis. We are hopeful of the outcome and wanted to share our journey with family and friends. I wanted to update her status as of January 2010. Ellie has physically done well despite her heart not seeing any improvement. We are still in limbo of whether she will need the transplant, but we are hoping to avoid that. The tumor was shrinking, but after the last scan appears to be slightly larger. We have a follow-up MRI in February, so wish us luck on that. She is one year old and talking and trying to stand on her own. She is such a joy to us and her sisters and keeps us all entertained.
Macy
Macy is such a bright personality. She loves to take care of her siblings and is the perfect non-rule breaker. She is such a good example to her little sisters and is very nurturing.
Adrie
Adrie is our spitfire and Is our drama queen of the family. But she is extremely tender hearted and is very observant of others and their feelings.
Eve
"Some people dream of angels, we held one in our arms."
Ellie Marie
This is Ellie! She is the reason behind this blog. She is the bravest strongest girl I know!!!
Claire
The baby of the family of all girls! She has been such a happy go lucky child. She keeps us laughing with her cute and fun personality!
Oh, Becca! I love it! She looks soo good. That just makes me have a great big smile to see her happy like that. I am sure that it was soo good for her to be able to see her sisters and for her sisters to get to see her. I just want to pick her up and give her big love's.
ReplyDeleteKim :-)
DARLING!!!! I love the big smiles!!! Was her surgery on the tumor or her heart?
ReplyDeleteShe looks great!!!!! This video seeing her smile when she saw Macy and Adrie is precioius!!
ReplyDeleteKim just told me about Ellie's blog today and I am so happy to get to see sweet Ellie smiling and that she is doing well! We love and miss you guys and are so glad the surgery went good! Kaylee was happy to see her long lost friends on the video and says to tell the girls hi! Thanks for the updates!
ReplyDeleteShe looks so great! I am so glad you are on the floor, thats one step closer to home!
ReplyDeleteShe is so darling (as are your other girls!) Glad to see that this one is over, hope all went well!
ReplyDeleteSo happy to see Ellie smiling!!
ReplyDelete